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Lainie Jones Comprehensive Cancer Survivorship Act of 2026
Introduced Jul 21, 2026 · Last action Jul 21, 2026 — Read twice and referred to the Committee on Finance.
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Summary
This legislation is called the Lainie Jones Comprehensive Cancer Survivorship Act of 2026. It is being reviewed by a committee.
Full bill text
[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[S. 5052 Introduced in Senate (IS)]
<DOC>
119th CONGRESS
2d Session
S. 5052
To address the health of cancer survivors and unmet needs that
survivors face through the entire continuum of care from diagnosis
through active treatment and posttreatment, in order to improve
survivorship, treatment, transition to recovery and beyond, quality of
life and palliative care, and long-term health outcomes, including by
developing a minimum standard of care for cancer survivorship,
irrespective of the type of cancer, a survivor's background, or
forthcoming survivorship needs, and for other purposes.
_______________________________________________________________________
IN THE SENATE OF THE UNITED STATES
July 21, 2026
Ms. Klobuchar (for herself and Ms. Alsobrooks) introduced the following
bill; which was read twice and referred to the Committee on Finance
_______________________________________________________________________
A BILL
To address the health of cancer survivors and unmet needs that
survivors face through the entire continuum of care from diagnosis
through active treatment and posttreatment, in order to improve
survivorship, treatment, transition to recovery and beyond, quality of
life and palliative care, and long-term health outcomes, including by
developing a minimum standard of care for cancer survivorship,
irrespective of the type of cancer, a survivor's background, or
forthcoming survivorship needs, and for other purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE; TABLE OF CONTENTS.
(a) Short Title.--This Act may be cited as the ``Lainie Jones
Comprehensive Cancer Survivorship Act of 2026''.
(b) Table of Contents.--The table of contents of this Act is as
follows:
Sec. 1. Short title; table of contents.
Sec. 2. Findings.
Sec. 3. Definitions.
Sec. 4. Coverage of cancer care planning and coordination services.
Sec. 5. Stakeholder meeting on survivorship transition tools;
publication of information resources.
Sec. 6. Alternative payment model for quality cancer survivorship care.
Sec. 7. Cancer survivor employment assistance program.
Sec. 8. Comprehensive cancer survivorship program.
Sec. 9. Survivorship progress report.
Sec. 10. Medicaid coverage of healthcare transitions for survivors of
childhood and adolescent cancer.
Sec. 11. Medicaid coverage of cancer fertility services for cancer
survivors.
Sec. 12. Office of Cancer Survivorship.
SEC. 2. FINDINGS.
Congress finds the following:
(1) A cancer survivor is any individual with a history of
cancer, from the time of diagnosis through the rest of their
life, across the continuum of care.
(2) Today, there are approximately 18,000,000 Americans who
are cancer survivors, and the number of survivors is projected
to reach 26,000,000 by 2040. Therefore, there is a great need
to be able to provide ways to sustain the care needed and to
offer those living with, through, and beyond cancer a safe,
supportive, and accommodating environment where such
individuals can engage in physical and social support
activities to sustain optimal quality of life.
(3) Cancer survivors face difficult emotional,
psychological, neurological, financial, legal, and other
physical challenges that persist beyond diagnosis and
treatment, often arising months and years after active cancer
treatment ends.
(4) Cancer survivors have unique needs and must manage
short- and long-term effects of their treatment, as well as
regular screenings for cancer recurrence or new cancers.
(5) Cancer survivors of racial and ethnic diversity, as
well as lower socioeconomic status, have disproportionately
lower health-related, quality-of-life scores compared to non-
Hispanic White cancer survivors.
(6) Cancer survivors living in rural areas have less access
to services and have poorer outcomes than survivors in
metropolitan areas.
(7) Children, adolescent, and young adult cancer survivors
are particularly susceptible to long-term consequences from
treatment, and up to 80 percent have a severe, disabling, life-
threatening, or fatal health condition by the age of 50. Best
practices in this area would improve treatment, quality of
life, and long-term health outcomes.
(8) Clinical trials have shown that cancer survivorship
programs help cancer survivors meet or exceed the recommended
amount of physical activity, significantly increasing their
cardiovascular health and overall quality of life and
decreasing their cancer-related fatigue.
(9) Despite the National Cancer Institute and other
professional organizations' definition of a cancer survivor
beginning on the day of a cancer diagnosis, there is little
agreement among clinicians, researchers, and insurance
companies on what services are included in ``survivorship
care'' and the point at which ``survivorship care'' begins.
(10) Cancer survivors, their families, their caregivers,
and their providers face many difficulties understanding and
coordinating the transition from specialty to primary care, and
for this reason communication and treatment are often
fragmented and inconsistent.
(11) To avoid additional health-related or financial
hardships to cancer survivors and their families, comprehensive
and forward-thinking cancer survivorship studies and programs
across Federal agencies, in collaboration with States,
localities, and medical and professional organizations, are
required to engage in a coordinated effort to improve health
outcomes and quality of life of survivors.
SEC. 3. DEFINITIONS.
In this Act:
(1) Cancer survivor.--The term ``cancer survivor'' means an
individual from the time of cancer diagnosis through the
balance of his or her life.
(2) Caregiver.--The term ``caregiver'' means a family
member, friend, or other person who cares for an individual
with a chronic or disabling condition, including cancer.
(3) Patient experience data.--The term ``patient experience
data'' means patient experiences, perspectives, needs, and
priorities related to--
(A) the symptoms of the patient's conditions and
the natural history of such conditions;
(B) the impact of the conditions on the patient's
functioning and quality of life;
(C) the patient's experience with treatments;
(D) input on which outcomes are important to the
patient;
(E) patient preferences for outcomes and
treatments; and
(F) the relative importance of any issues as
defined by patients.
(4) Psychosocial effects.--The term ``psychosocial
effects''--
(A) means the psychological, behavioral, emotional,
and social effects of a disease, such as cancer, and
its treatment; and
(B) in the case of such effects of cancer, includes
changes in how a patient thinks, their feelings, moods,
beliefs, ways of coping, and relationships with family,
friends, and coworkers.
(5) Psychosocial care.--The term ``psychosocial care''
means psychological and social services and interventions that
enable survivors, patients, their families, and health care
providers to optimize health care and to manage the
psychological, behavioral, physical, emotional, and social
aspects of illness and its consequences so as to promote better
health and well-being.
(6) Secretary.--Except as otherwise specified, the term
``Secretary'' means the Secretary of Health and Human Services.
(7) Survivorship.--The term ``survivorship'' means the
period from the time of cancer diagnosis until the end of life,
including any portions of such period during which
interventions are necessary to address--
(A) the physical, mental, emotional, social, and
financial effects of cancer that begin at diagnosis and
continue through treatment and beyond; and
(B) issues related to follow-up care (including
regular health and wellness checkups), late and long-
term effects of treatment, screening for cancer
recurrence and new cancers, and quality of life.
(8) Survivorship care plan.--The term ``survivorship care
plan''--
(A) means an individualized care plan for patients
who have been diagnosed with cancer; and
(B) includes a treatment summary and any follow-up
care guidelines in such plan that--
(i) are for monitoring and maintaining the
patient's medical and psychosocial health and
well-being; and
(ii) are meant to be a transition and
communication tool for the survivor, their
family, their caregiver, and all their health
care providers.
(9) Survivorship navigation.--The term ``survivorship
navigation'' means a service that--
(A) helps patients overcome health care system and
other barriers; and
(B) provides patients with timely access to high-
quality medical, physical, and psychosocial care from
their cancer diagnosis through all phases of their
cancer experience.
(10) Treatment summary.--The term ``treatment summary''
means a detailed summary of a patient's disease, the types of
treatment the patient received, members of the patient's care
team, and any side effects or other problems, including
psychosocial effects, caused by treatment.
SEC. 4. COVERAGE OF CANCER CARE PLANNING AND COORDINATION SERVICES.
(a) In General.--Section 1861 of the Social Security Act (42 U.S.C.
1395x) is amended--
(1) in subsection (s)(2)--
(A) by striking ``and'' at the end of subparagraph
(II);
(B) by adding ``and'' at the end of subparagraph
(JJ); and
(C) by adding at the end the following new
subparagraph:
``(KK) cancer care planning and coordination services (as
defined in subsection (nnn));''; and
(2) by adding at the end the following new subsection:
``Cancer Care Planning and Coordination Services
``(nnn)(1) The term `cancer care planning and coordination
services' means, with respect to an individual who is diagnosed with
cancer, the development of a treatment plan by a physician, physician
assistant, or nurse practitioner that--
``(A) includes each component of the Institute of Medicine
Care Management Plan (as described in the article entitled
`Delivering High-Quality Cancer Care: Charting a New Course for
a System in Crisis' published by the Institute of Medicine);
``(B) is furnished in written form or electronically, at
the visit of such individual with such physician, physician
assistant, or nurse practitioner, or as soon after the date of
the visit as practicable; and
``(C) is furnished, to the greatest extent practicable, in
a form that appropriately takes into account cultural and
linguistic needs of the individual in order to make the plan
accessible to such individual.
``(2) The Secretary shall establish frequencies at which services
described in paragraph (1) may be furnished, provided that such
services may be furnished with respect to an individual--
``(A) at the time such individual is diagnosed with cancer
for purposes of planning treatment;
``(B) if there is a change in the condition of such
individual or such individual's treatment preferences;
``(C) at the end of active treatment and beginning of
survivorship care; and
``(D) if there is a recurrence of such cancer.''.
(b) Payment Under Physician Fee Schedule.--
(1) In general.--Section 1848(j)(3) of the Social Security
Act (42 U.S.C. 1395w-4(j)(3)) is amended by inserting
``(2)(KK),'' after ``health risk assessment),''.
(2) Initial rates.--Unless the Secretary otherwise
provides, the payment rate specified under the physician fee
schedule under the amendment made by paragraph (1) for cancer
care planning and coordination services shall be the same
payment rate as provided for transitional care management
services (as defined in CPT code 99496).
(c) Effective Date.--The amendments made by this section shall
apply to services furnished on or after the first day of the first
calendar year that begins after the date of the enactment of this Act.
SEC. 5. STAKEHOLDER MEETING ON SURVIVORSHIP TRANSITION TOOLS;
PUBLICATION OF INFORMATION RESOURCES.
(a) In General.--The Secretary shall convene a stakeholder meeting
(in this section referred to as the ``meeting'') to evaluate
strategies, including the use of information technology, to improve
transitions in care from active treatment to long-term.
(b) Participants.--In conducting the meeting, the Secretary shall
ensure that the participants include representatives of patient
advocacy organizations, medical professional societies, community-based
organizations, electronic health record vendors, information technology
experts, and other stakeholders of the meeting.
(c) Consideration of Existing Tools.--In conducting the meeting,
the Secretary shall ensure that the participants consider existing
tools for improving transitions to survivorship care, such as--
(1) the survivorship guidelines of the National
Comprehensive Cancer Network and the American Society of
Clinical Oncology;
(2) the Passport for Care survivor website;
(3) survivorship care software applications that have been
developed by patient advocacy organizations, research
foundations, and for-profit entities; and
(4) other information and tools that may improve
transitions in care and improve overall quality of survivorship
care.
(d) Consideration of Privacy and Security Implications.--In
conducting the meeting, the Secretary shall feature collaboration with
the Office for Civil Rights of the Department of Health and Human
Services to evaluate the privacy and security implications of--
(1) consolidating treatment history and survivorship
guidelines into a personalized survivorship care plan that
outlines future health care needs after completion of active
treatment;
(2) patient use of computer or mobile phone-based
application programs described in subsection (c)(3); and
(3) taking into consideration the results of meeting under
subsection (a).
(e) Publication of Information Resources.--
(1) In general.--Not later than 36 months after the date of
enactment of this Act, the Secretary shall, taking into
consideration the results of the meeting, publish information
resources for cancer patients and providers on strategies for
consolidating treatment history and survivorship guidelines
into a personalized survivorship care plan to guide
survivorship monitoring and follow-up care.
(2) Inclusion of recommendations on patient use of software
application programs.--The information resources referred to in
paragraph (1) shall include recommendations on patient use of
software application programs to develop personalized
survivorship care plans.
(f) Electronic Health Record Defined.--In this section, the term
``electronic health record'' means an electronic record of health-
related information on an individual that is created, gathered,
managed, and consulted by authorized health care clinicians and staff.
SEC. 6. ALTERNATIVE PAYMENT MODEL FOR QUALITY CANCER SURVIVORSHIP CARE.
(a) In General.--Not later than one year after the date of
enactment of this Act, the Secretary of Health and Human Services shall
develop an alternative payment model for payments made under titles
XVIII and XIX of the Social Security Act (42 U.S.C. 1395 et seq., 1396
et seq.) for items and services relating to cancer survivorship care
(as defined by the Secretary).
(b) Report to Congress.--Following development of the alternative
payment model under subsection (a), the Secretary shall submit to
Congress a report containing a description of such model that includes
the following information:
(1) A description of what event would trigger an
individual's entry into such a model (such as the end of the
individual's active cancer treatment, the beginning of the
individual's need for supportive care during active treatment,
or another event).
(2) The length of the individual's participation under such
model, including a description of any ability to extend such
participation, or a definition of survivorship care as
extending until death.
(3) In the case that such model is based on an episode of
care, the appropriate length of the survivorship episode of
care, whether additional episodes may be triggered, if
necessary, and whether the episode should end at the
beneficiary's death but not before.
(4) Strategies to ensure that any episode of care under
such a model begins with the development and dissemination of a
survivorship care plan for the transition from active cancer
treatment to follow-up care to the individual and all relevant
health care providers.
(5) A description of the navigation services that will be
provided as part of such model.
(6) A description of any bundled payment packages that will
be used under such model.
(7) A specification of any follow-up or new screening under
such model for unmet needs of individuals participating in such
model.
(8) A description of how consistent, shared decision-making
will be promoted under such model so that individuals are given
the knowledge needed for self-management between episodes of
care.
(9) A specification of which types of health care providers
may furnish items and services under such model, including
genetic counselors and mental health professionals.
(10) Strategies for applying evidence-based risk
stratification principles to direct survivors to personalized
care pathways that match the level of care needed to the
relative risks and needs of the survivor.
(11) Strategies for coordination of care between such
providers, such as between specialists and primary care
providers, and how principal responsibility will be assigned
for an episode of care.
(12) Strategies for addressing social determinants of
health through such model.
(13) A description of how such model will promote--
(A) prevention, early detection surveillance, and
treatment for individuals continuing to receive
systemic therapy after the end of active cancer
treatment;
(B) such individuals' understanding of, and access
to, treatment;
(C) survivorship research; and
(D) the continuing health of cancer survivors.
(14) An analysis of how different forms and stages of
cancer may require the development of different survivorship
plans and suggest variations in elements of the alternative
payment model based on form and stage of cancer.
(15) A plan for testing any alternative payment model
described in the report, including the timing of such testing,
an analysis of the impact of such testing, any barriers to
implementing such testing, and any other recommendations
determined appropriate by the Secretary.
SEC. 7. CANCER SURVIVOR EMPLOYMENT ASSISTANCE PROGRAM.
(a) In General.--The Secretary of Labor, in consultation with the
Secretary of Health and Human Services, shall carry out a program to
award grants to non-profit organizations and other entities to provide
education and targeted assistance--
(1) to eligible cancer survivors facing barriers to
employment, including those who remain in the workforce during
treatment, those who reduce working hours while in treatment,
and those who reenter the workforce after a treatment-related
departure; and
(2) to the families and caregivers of such eligible cancer
survivors.
(b) Program Components.--The program under this section shall
include the following:
(1) Assistance, career and training services, and
supportive services for eligible cancer survivors who stay in
the workforce during treatment, and for their families and
caregivers, including--
(A) transportation assistance;
(B) childcare assistance;
(C) nutritional assistance;
(D) physical activity assistance;
(E) psychosocial assistance;
(F) financial assistance during a period of medical
leave; and
(G) other similar assistance.
(2) Assistance and education for eligible cancer survivors
who leave the workforce during treatment, and for their
families and caregivers, including--
(A) financial assistance during a period of medical
leave;
(B) assistance with premiums for continuation
coverage provided pursuant to part 6 of subtitle B of
title I of the Employee Retirement Income Security Act
of 1974 (29 U.S.C. 1161 et seq.), title XXII of the
Public Health Service Act (42 U.S.C. 300bb-1 et seq.),
or section 4980B of the Internal Revenue Code of 1986
(26 U.S.C. 4980B); and
(C) career and training services, including
upskilling and reskilling, for eligible cancer
survivors who are not able to return to work after
treatment.
(3) Assistance, career and training services, and
supportive services for eligible cancer survivors who are
unable to work after a cancer diagnosis, and their families and
caregivers, including--
(A) assistance in applying for--
(i) supplemental security income benefits
under title XVI of the Social Security Act (42
U.S.C. 1381 et seq.);
(ii) disability insurance benefits under
section 223 of the Social Security Act (42
U.S.C. 423);
(iii) benefits under a State plan, or
waiver of such plan, under title XIX of the
Social Security Act (42 U.S.C. 1396 et seq.);
(iv) with respect to minimizing delays in
eligibility before a cancer survivor becomes
eligible for Medicare coverage, benefits under
the Medicare program under title XVIII of the
Social Security Act (42 U.S.C. 1801 et seq.),
including with respect to enrolling in plans
under part C or D of such title and
supplemental plans under section 1882 of such
title;
(v) State and private sector assistance
programs for such cancer survivors; and
(vi) career and training services available
under title I, II, or IV of the Workforce
Innovation and Opportunity Act (29 U.S.C. 3101
et seq.); and
(B) information on the eligibility of a cancer
survivor, and their families and caregivers, for
benefits or services described in any of clauses (i)
through (vi) of subparagraph (A).
(c) Evidence-Based Resources.--In carrying out this section, the
Secretary of Labor, in consultation with the Secretary of Health and
Human Services, shall use evidence-based resources, including--
(1) nationally recognized evidence-based guidelines; and
(2) other resources as determined by the Secretary.
(d) Definitions.--In this section:
(1) The term ``eligible cancer survivor'' means a cancer
survivor (as defined in section 3) who--
(A) remains in the workforce during cancer
treatment;
(B) reduces working hours during cancer treatment;
(C) reenters the workforce after a cancer
treatment-related departure; or
(D) leaves the workforce as the result of a cancer
diagnosis or related complications.
(2) The term ``supportive services'' has the meaning given
such term in section 3 of the Workforce Innovation and
Opportunity Act (29 U.S.C. 3102).
SEC. 8. COMPREHENSIVE CANCER SURVIVORSHIP PROGRAM.
(a) In General.--The Secretary shall carry out a comprehensive
cancer survivorship program that includes a program of supportive care
services in accordance with subsection (b) to improve the quality of
life and long-term survivorship of cancer survivors.
(b) Cancer Survivorship Quality-of-Life Program.--
(1) In general.--The Secretary shall carry out a program of
awarding grants to eligible entities to provide services to
cancer survivors to enhance their quality of life and improve
their long-term survival rates. Not later than 18 months after
the date of enactment of this Act, the Secretary shall commence
operating such program.
(2) Eligible entity defined.--In this subsection, the term
``eligible entity'' includes an entity that is--
(A) a State comprehensive cancer program;
(B) a National Cancer Institute-designated cancer
center or centers; or
(C) a community-based organization, including a
patient advocacy organization, that--
(i) has the capacity to reach cancer
survivors through local, State, or national
organizations; and
(ii) is focused on cancer survivors and
strategies for meeting their needs related to
their health and well-being.
(3) Use of funds.--A grant received under this subsection
shall be used to provide services to cancer survivors to
enhance their quality of life and improve their long-term
survival rates, such as by assisting survivors to--
(A) engage in moderate physical activity and other
health-promoting activities, including ceasing tobacco
use and increasing consumption of healthy foods;
(B) increase access to services to mitigate
anxiety, depression, and uncertainty;
(C) utilize community support services to fully
implement survivorship care plans;
(D) access nutrition education and counseling; and
(E) adhere to a schedule for, and access, screening
for recurrence of cancer or the occurrence of other
primary cancers.
(4) Standards for application from eligible entities.--To
seek a grant under this subsection, an eligible entity shall
submit an application, at such time as may be required by the
Secretary, that includes--
(A) an explanation of how the entity will--
(i) provide cancer survivors access to
cancer patient navigator services;
(ii) overcome barriers to care for
communities of color and multilingual
communities;
(iii) provide culturally competent care;
and
(iv) work with and support caregivers of
cancer survivors;
(B) a description of how the entity receives
referrals of cancer survivors from health care
professionals, including health care professionals
serving historically disadvantaged and underserved
communities;
(C) documentation of the curriculum that will be
used for providers in the program, including mechanisms
to update the staff on curriculum changes; and
(D) an agreement to provide the Secretary
semiannual reports on--
(i) the number of participants served;
(ii) quality-of-life measures for
participants; and
(iii) plans for fostering communication
between oncology and non-oncology providers
serving participants.
(5) Responsibilities of the secretary.--The Secretary
shall--
(A) conduct outreach to inform health care
professionals of the availability of programs and
activities funded under this subsection;
(B) analyze the data submitted by grantees under
this subsection to determine the number of cancer
survivors served and the impact of the program under
this subsection on their quality of life;
(C) share best practices among all grantees under
this subsection; and
(D) consider strategies for the coordination of the
program carried out under this section with the
alternative payment model for quality survivorship care
developed under section 6 to ensure that enrollees in
the alternative payment model have access to the
services that will be funded through the program.
SEC. 9. SURVIVORSHIP PROGRESS REPORT.
(a) In General.--Not later than 6 months after the date of
enactment of this Act, the Secretary shall enter into an agreement with
the Government Accountability Office to conduct a study of the progress
made in cancer survivorship over the period beginning on the date of
enactment of the National Cancer Act of 1971 (Public Law 92-216).
(b) Scope of the Study.--The study under subsection (a) shall
investigate developments over the period described in subsection (a)
in--
(1) the nature and quality of survivorship care;
(2) transitions from active treatment to survivorship care;
(3) the quality of life of cancer survivors;
(4) outcomes for cancer survivors;
(5) disparities in access to care and survivorship
outcomes;
(6) the health care systems for providing survivorship
care;
(7) the contribution of community-based services to the
survivorship care system; and
(8) payment for survivorship care by public and private
third-party payors.
(c) Role of Office of Cancer Survivorship.--The study under
subsection (a) shall--
(1) consider the contribution of the Office of Cancer
Survivorship to the evolution of cancer survivorship care over
the last 25 years; and
(2) assess the impact of the mission of the Office and the
resources provided to the Office on its leadership in cancer
survivorship care.
(d) Public Meeting.--In conducting the study under subsection (a),
the Comptroller General of the United States shall hold a public
meeting with a broad cross section of stakeholders to inform the
study's findings and conclusions. Such stakeholders shall include--
(1) cancer survivors and their caregivers and families;
(2) patient organizations representing cancer survivors;
(3) oncologists involved in survivorship care and the
professional societies representing them;
(4) primary care providers involved in survivor-ship care
and the professional societies representing them;
(5) other health professionals providing survivorship care
and the professional societies representing them;
(6) community-based organizations involved in survivorship
care;
(7) representatives of the National Cancer Institute;
(8) third-party payors;
(9) researchers engaged in survivorship research;
(10) epidemiologists with knowledge of trends in cancer
survivorship; and
(11) such other stakeholders as the Comptroller General
deems important to participate in the public meeting.
(e) Report.--The Comptroller General of the United States shall--
(1) release a report on the results of the study under
subsection (a); and
(2) in addition to the public meeting convened under
subsection (d)--
(A) convene another public meeting to be held on
the day of the release of the report; and
(B) include in such meeting all categories of
stakeholders listed in subsection (d).
SEC. 10. MEDICAID COVERAGE OF HEALTHCARE TRANSITIONS FOR SURVIVORS OF
CHILDHOOD AND ADOLESCENT CANCER.
(a) In General.--Section 1902(a)(10) of the Social Security Act (42
U.S.C. 1396a(a)(10)) is amended--
(1) in subparagraph (F), by striking ``; and'' and
inserting a semicolon;
(2) in subparagraph (G), by adding at the end ``and''; and
(3) by inserting after subparagraph (G) the following new
subparagraph:
``(H) notwithstanding section 1902(a)(10)(B)
(relating to comparability), for making medical
assistance available for healthcare transitions for
survivors of childhood and adolescent cancer (as
defined in section 1905(jj));''.
(b) Definition.--Section 1905 of the Social Security Act (42 U.S.C.
1396d) is amended by adding at the end the following new subsection:
``(jj) Healthcare Transitions for Survivors of Childhood and
Adolescent Cancer.--
``(1) Definition.--For purposes of section 1902(a)(10)(H)
and this subsection, the term `healthcare transitions for
survivors of childhood and adolescent cancer'--
``(A) means transition services from active
oncological care to primary care of a child or
adolescent with cancer ensuring development and
delivery of survivorship care plans to patients,
families and primary care providers and transition
coverage; and
``(B) includes--
``(i) transition care based on the
Children's Oncology Group (in this section
referred to as the `COG') Long-term Follow-Up
Guidelines for Survivors of Childhood,
Adolescent, and Young Adult Cancers; and
``(ii) coverage based on the COG exposure-
based standard of care for risk assessment and
surveillance recommendations;
``(iii) transition services that include
evidence-based recommendations for screening
and management of late effects that may arise
as a result of treatment for childhood cancer,
increase awareness of potential late effects,
and follow-up care for childhood cancer and
adolescent survivors; and
``(iv) at least 2 survivorship transition
care visits per year.''.
SEC. 11. MEDICAID COVERAGE OF CANCER FERTILITY SERVICES FOR CANCER
SURVIVORS.
(a) Medicaid.--
(1) Mandatory coverage.--Section 1902(a)(10) of the Social
Security Act (42 U.S.C. 1396a) is amended--
(A) in subparagraph (F), by striking ``; and'' and
inserting a semicolon;
(B) in subparagraph (G), by adding at the end
``and''; and
(C) by inserting after subparagraph (G) the
following new subparagraph:
``(H) notwithstanding section 1902(a)(10)(B)
(relating to comparability), for making medical
assistance available for cancer fertility services (as
defined in subsection (kk));''.
(2) Definition.--Section 1905 of the Social Security Act
(42 U.S.C. 1396d), as amended by section 10(4) of this Act, is
further amended by adding at the end the following new
subsection:
``(kk) Cancer Fertility Services.--
``(1) Definition.--For purposes of section 1902(a)(10)(H)
and this subsection, the term `cancer fertility services'--
``(A) means fertility treatment and fertility
preservation services for individuals diagnosed with
cancer who--
``(i) are undergoing treatment for such
cancer where such treatment may lead to
iatrogenic infertility;
``(ii) previously underwent such treatment
and may be at risk of such infertility due to
such treatment; or
``(iii) are preparing to undergo such
treatment where such treatment may lead to such
infertility; and
``(B) includes--
``(i) other services, including
experimental and non-experimental services to
preserve fertility or treat infertility (as
determined by the Secretary, consistent with
established medical practices and professional
guidelines published by the American Society
for Reproductive Medicine, the American Society
of Clinical Oncology, or other professional
medical organizations specified by the
Secretary); and
``(ii) long-term storage costs--
``(I) with respect to individuals
under the age of 18, for a period of
not less than 15 years; and
``(II) with respect to individuals
age 18 or older, for a period of not
less than 10 years.
``(2) Exception for territories.--Notwithstanding any other
provision of this title, in the case of a State (other than the
50 States and the District of Columbia), the requirement stated
in section 1902(a)(10)(H) shall be optional.''.
(3) Prohibition on cost-sharing.--
(A) In general.--Section 1916 of the Social
Security Act (42 U.S.C. 1396o) is amended--
(i) in subsection (a)(2)--
(I) in subparagraph (I), by
striking at the end ``, or'' and
inserting a semicolon;
(II) in subparagraph (J), by
striking at the end ``; and'' and
inserting ``; or''; and
(III) by adding at the end the
following new subparagraph:
``(K) cancer fertility services (as defined in
section 1905(kk)); and''; and
(ii) in subsection (b)(2)--
(I) in subparagraph (I), by
striking at the end ``, or'' and
inserting a semicolon;
(II) in subparagraph (J), by
striking at the end ``; and'' and
inserting ``; or''; and
(III) by adding at the end the
following new subparagraph:
``(K) cancer fertility services (as defined in
section 1905(jj)); and''.
(B) Application to alternative cost-sharing.--
Section 1916A(b)(3)(B) of the Social Security Act (42
U.S.C. 1396o-1(b)(3)(B)) is amended by adding at the
end the following new clause:
``(xv) Cancer fertility services (as
defined in section 1905(jj)).''.
(b) CHIP.--
(1) In general.--Section 2103(c) of the Social Security Act
(42 U.S.C. 1397cc(c)) is amended--
(A) by redesignating the paragraph (12) added by
section 11405(b)(1) of Public Law 117-169 as paragraph
(13); and
(B) by inserting after paragraph (11) the following
new paragraph:
``(12) Required coverage of cancer fertility services for
cancer survivors.--Regardless of the type of coverage elected
by a State under subsection (a), the child health assistance
provided for a targeted low-income child, and, in the case of a
State that elects to provide pregnancy-related assistance
pursuant to section 2112, the pregnancy-related assistance
provided for a targeted low-income pregnant woman (as such
terms are defined for purposes of such section), shall include
coverage of cancer fertility services (as described in section
1905(jj)).''.
(2) Prohibition on cost-sharing.--Section 2103(e)(2) of the
Social Security Act (42 U.S.C. 1397cc(e)(2)) is amended--
(A) in the heading, by inserting ``Cancer fertility
services'' after ``COVID-19 treatment''; and
(B) by inserting ``cancer fertility services (as
described in section 1905(jj)),'' after ``testing or
treatments described in section 1916(a)(2)(I) furnished
during the period described in such section''.
(3) Effective date.--The amendment made by paragraph (1)(A)
shall take effect on October 1, 2026.
(c) Effective Date.--The amendments made by this section (other
than the amendment made by subsection (b)(1)(A)) shall apply with
respect to medical assistance, child health assistance, and pregnancy-
related assistance furnished on or after the date that is 18 months
after the date of the enactment of this Act.
SEC. 12. OFFICE OF CANCER SURVIVORSHIP.
(a) In General.--The Secretary shall establish within Office of the
Director of the National Cancer Institute (referred to in this section
as ``NCI'') the Office of Cancer Survivorship (referred to in this
section as the ``Office'').
(b) Purpose.--The Office shall function as the entity within NCI
with primary responsibility for improving cancer survivorship for
individuals living with and through cancer.
(c) Responsibilities.--The Office shall undertake the following
responsibilities:
(1) Management of a portfolio of research grants focused on
survivorship topics, including--
(A) late and long-term effects of cancer and cancer
treatment;
(B) interventions to address late and long-term
effects of cancer;
(C) health delivery models that ensure access to
quality survivorship care for all survivors; and
(D) communication and education efforts to enhance
access to survivorship care for all survivors.
(2) Professional education efforts to share best practices
in survivorship care and to improve survivorship care delivery.
(3) Survivor education efforts related to--
(A) understanding the late and long-term effects of
cancer and cancer treatment;
(B) improving access to monitoring and follow-up
care after active treatment for all survivors; and
(C) enhancing survivor management of long-term
follow-up survivorship care.
<all>Official legislative text sourced from the public record (cached on CivicsHQ).
Official source
View the original bill, actions, and full legislative record on Congress.gov.
Status
In Committee
- 1Introduced
- 2Committee
- 3Floor
- 4Passed
- 5Signed
Timeline reflects current normalized status only. Full action history is not yet stored in the API.
Sponsors
- Sen. Klobuchar, Amy [D-MN]DSenateMN
Cosponsors
Votes
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